On May 15, 2009, my 2 year old daughter, Neely, caught a virus. There wasn’t anything special about the virus – just a typical stomach bug. In trying to fight it off, Neely’s immune system became confused and began attacking her brain and spinal chord. It is a rare condition called Acute Disseminating Encephalomyelitis (ADEM). In less than 12 days, Neely went from a healthy, happy Toddler to a heart beat and a shallow breath. Those were the scariest days of our lives and literally changed the core of who we are and how we live as a family. It is a painful and inspiring story that we hope you will share.
Neely hasn't crossed the ADEM finish line yet, but we remain hopeful that one day she will. We just keep taking one step at a time (even when that step takes us back) and we use this site to share that journey with you. A very important part of Neely's recovery is the encouragement and support that we've received from friends, families and followers of her story. If you'd like to help us celebrate Neely's Miracle and continued recovery, this site is a great place to stay informed about her progress. Check back often and feel free to share your miracles with us!
There is no doubt in our minds that God works miracles through the hands of the physicians, nurses, and caregivers at the Children's Hospital. And while Neely is incredibly special to us, we know that she is just one of the many miracles at Children's Hospitals everyday. For that reason, we take every opportunity give back to the hospital that gave us so much! By supporting Children's Hospital Systems and reaching out to families through this site, we hope we are making it a little easier for the families that come behind us.